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Daily Archives: February 8, 2016

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Meme Monday: 4 Encouraging Memes to Fuel Your #MondayMotivation

Meme Monday: 4 Encouraging Memes to Fuel Your #MondayMotivation

  • Post author:Rebekah
  • Post published:February 8, 2016
  • Post category:Rare Disease

The Webster dictionary defines motivation as, "a force or influence that causes someone to do something." So that leads us to ask... What's the force that causes you to take…

Continue Reading Meme Monday: 4 Encouraging Memes to Fuel Your #MondayMotivation
This is What Happens When Parents Are Clueless

This is What Happens When Parents Are Clueless

  • Post author:Alisha Stone
  • Post published:February 8, 2016
  • Post category:Wilson Disease

Okay, call me crazy. Call me SNARKY, but this is ridiculous! Here’s another perfect example of: Not having all of the facts! OR Stupidity that almost gets an innocent young…

Continue Reading This is What Happens When Parents Are Clueless
Does This Bandage Make My Butt Look Big?

Does This Bandage Make My Butt Look Big?

  • Post author:Patient Worthy Contributor
  • Post published:February 8, 2016
  • Post category:Rare Disease

2016 has started out pretty rough. Beginning at around noon on January 1st, I had to deal with a very painful pocket of infection just to the left of my…

Continue Reading Does This Bandage Make My Butt Look Big?
Being a Bad Patient Saved My Life, Part 1

Being a Bad Patient Saved My Life, Part 1

  • Post author:Patient Worthy Contributor
  • Post published:February 8, 2016
  • Post category:Rare Disease

Part 1: A Terrible Itch—and Unspeakable Loss Everyone knows that I am an autoimmune mess due to an invisible chronic illness comprised of multiple autoimmune diseases. Here is a part of…

Continue Reading Being a Bad Patient Saved My Life, Part 1
A Rundown on Pulmonary Hypertension

A Rundown on Pulmonary Hypertension

  • Post author:Patient Worthy Contributor
  • Post published:February 8, 2016
  • Post category:pulmonary arterial hypertension

Pulmonary Hypertension is a rare and debilitating condition that can prove fatal in as little as three years unless specialized treatment is given. The Pulmonary Hypertension Association has developed an accreditation process…

Continue Reading A Rundown on Pulmonary Hypertension
Conozcamos a Charlie: Un Rebelde con una Causa Digna

Conozcamos a Charlie: Un Rebelde con una Causa Digna

  • Post author:Patient Worthy Contributor
  • Post published:February 8, 2016
  • Post category:CVID/Rare Disease

Soy Charlie, un joven de 27 años de edad, trabajando en marketing digital en Auckland, Nueva Zelanda. Soy un gran fan de un buen café, buena cerveza, buen vino, buena…

Continue Reading Conozcamos a Charlie: Un Rebelde con una Causa Digna

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