On a Friday night, Torrie Kruse's world went black. The teenager can't recall being rushed to the hospital. She can't recall doctors scrambling around her hospital bed, trying to make sense of the problem. She…
Conoce a Hannah, no puede no darse cuenta de todo lo que ella lucha con mirarla. Ella tiene doce años de edad. Esta es #InvisibleFight de Hannah Con Osteodistrofia hereditaria…
When Jon Miller, president and founder of the Network of Tyrosinemia Advocates (NOTA), learned of a family in Puerto Rico who had moved to Connecticut to get treatment for their…
Raise your hand if a doctor’s accused you of pill-seeking? Blamed your symptoms on your weight or claimed you were too young, too black, too old, too Latino to be…
Leanna Mullen knows what it's like to look absolutely normal while in reality being very sick. She has Gaucher disease, a rare inherited condition where the body can't break down…
Are you an adult with isolated cervical dystonia? Wake Forest (Winston Salem, NC) is running a clinical trial of a new botulinum toxin. For more information click here. Or contact:…
Mi nombre es Bonnie y he estado luchando por mi vida durante dieciocho años, pero he estado luchando una batalla invisible durante los últimos doce. Esta es la historia #myinvisiblefight…
Super Bowl 50 is this Sunday! In case you live in a box, the Super Bowl is kind of a big deal. And why shouldn't it be? You take the…
When 63-year-old Donald Castner of Napa Valley, California was diagnosed with idiopathic pulmonary fibrosis, or IPF, it came as a complete surprise. After all, he'd been active and in good health…
To read part 1 of Lisa's post, click here. These are some of my favorite online support for just about anything you need: Have a basic question? These forums are…
You know how that saying goes: “All that glitters is not gold.” Or maybe, “too much of a good thing can make you sick.” Both apply to the metal copper.…
Hey guys... I have a confession to make: I hate dancing. HATE. IT. I hate it because I'm bad at it, and I don't like doing things I'm bad at, especially…
Mi nombre es Bonnie y he estado luchando por mi vida durante dieciocho años, pero he estado luchando una batalla invisible durante los últimos doce. Esta es #myinvisiblefight. En 2002, colgué…
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