Say all you want about the threat of robots taking over the world—technology is making lives easier for those of us who are human. And humans who suffer from ankylosing spondylitis, psoriatic…
The online Women’s Encyclopedia, had an interesting article about Severe Combined Immunodeficiency (SCID) and I’d like to share some of the highlights: Fast Facts That EVERY Parent Must Know SCID…
Most researchers like to say that their work is “groundbreaking” or “revolutionary.” And most reporters—whether print or digital—like to use those words too, because they help get people’s attention. But…
While this information is great, there is still not enough known about Behcet's and its causes... A disease forecast report for Behcet's Disease was recently released by Research & Markets and further…
Last year, the International Rare Diseases Research Consortium (IRDiRC) has established a task force with the objective of promoting Patient-Centered Outcome Measures in the area of rare diseases. What it means is this: The conversation…
Postural Orthostatic Tachycardia Syndrome (POTS) is definitely not an easy disease to live with. You know, the heart rate and all. Oh and those pointless discussions if it's a disease…
La familia Corr ha tenido un año difícil. Resistente, seguro, pero igual de feliz. Ellos han estado adaptando a la vida con su hija mayor año Harriet. Poco después del…
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