Why This New CVID Research Is The Most Exciting Thing You’ll Hear About Today

Most researchers like to say that their work is “groundbreaking” or “revolutionary.” And most reporters—whether print or digital—like to use those words too, because they help get people’s attention. But…

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Rare Patient Voices Wanted: Speak Your Mind

Last year, the International Rare Diseases Research Consortium (IRDiRC) has established a task force with the objective of promoting Patient-Centered Outcome Measures in the area of rare diseases. What it means is this: The conversation…

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