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Daily Archives: April 22, 2016

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Need Groceries? Here is an Anti-Inflammatory Shopping List
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Need Groceries? Here is an Anti-Inflammatory Shopping List

  • Post author:Patient Worthy Contributor
  • Post published:April 22, 2016
  • Post category:Rare Disease

Eating well can be extremely expen$ive, but its vital for healthy vitals! But when you are living with autoimmune disease and other inflammatory conditions limiting (avoiding all together for many) pro-inflammatory…

Continue Reading Need Groceries? Here is an Anti-Inflammatory Shopping List
Un caso donde “Hermano Grande” puede ser Bueno para pacientes con AEH

Un caso donde “Hermano Grande” puede ser Bueno para pacientes con AEH

  • Post author:Patient Worthy Contributor
  • Post published:April 22, 2016
  • Post category:HAE/Rare Disease

Sufre de AEH? Biofeedback Reporting puede salvar su vida! Hay muchas noticias saliendo al rededor de BioRx, una empresa nacional de la especialidad farmacéutica, con sede en Cincinnati, Ohio. Se…

Continue Reading Un caso donde “Hermano Grande” puede ser Bueno para pacientes con AEH
Editor’s Choice: David and Goliath, Fit and Fab

Editor’s Choice: David and Goliath, Fit and Fab

  • Post author:Patient Worthy Contributor
  • Post published:April 22, 2016
  • Post category:Acromegaly/Cushing Disease/Dystonia/Rare Disease

Happy Passover Weekend Patient Worthians! This week Acromegaly is taking over! It's no secret that rare diseases go misdiagnosed, so in Biblical times, it's safe to say this disease when UNdiagnosed for…

Continue Reading Editor’s Choice: David and Goliath, Fit and Fab
Simple Ways To Celebrate Vasculitis Awareness Month

Simple Ways To Celebrate Vasculitis Awareness Month

  • Post author:Farrah Fontaine
  • Post published:April 22, 2016
  • Post category:Behçet's/Churg-Strauss Syndrome/Rare Disease/Timely

We all know the saying: April showers bring May flowers. But did you know that April sharing brings May caring? May is Vasculitis Awareness Month, and the Vasculitis Foundation has…

Continue Reading Simple Ways To Celebrate Vasculitis Awareness Month
What Is Amyloidosis, And How Can It Be Managed?
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What Is Amyloidosis, And How Can It Be Managed?

  • Post author:Erica Zahn
  • Post published:April 22, 2016
  • Post category:Amyloidosis/Rare Disease

To understand the rare disease Amyloidosis, you have to understand the underlying cause. When bone marrow produces an abnormal protein, called "amyloid," it can be deposited in virtually any organ or tissue in…

Continue Reading What Is Amyloidosis, And How Can It Be Managed?
Is This an Insulting Way to Explain Dystonia?
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Is This an Insulting Way to Explain Dystonia?

  • Post author:EmpatheticBadass
  • Post published:April 22, 2016
  • Post category:Dystonia/Rare Disease

At first, I howled and wanted to tear my hair out…. I was reading an article about the problems a famous golfer was having with his putting during the PGA…

Continue Reading Is This an Insulting Way to Explain Dystonia?
When Nanoparticles Rule the World, Treatments Get Better
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When Nanoparticles Rule the World, Treatments Get Better

  • Post author:Erica Zahn
  • Post published:April 22, 2016
  • Post category:Hemophilia A/Hemophilia B/Rare Disease/Timely

What the heck is a nanoparticle? It sounds very Twilight Zone-ish, and in some ways, nanoparticles are just that. The thing is, nanoparticles are the movers and shakers of the biologic…

Continue Reading When Nanoparticles Rule the World, Treatments Get Better
Announcing The Best Behcet’s Awareness Day Celebration

Announcing The Best Behcet’s Awareness Day Celebration

  • Post author:Farrah Fontaine
  • Post published:April 22, 2016
  • Post category:Behçet's/Rare Disease/Timely

Alright, folks: Get out your calendars! Or more appropriately, pull up your calendar on your phone! Now, go to May 22nd. It's a Sunday. How does your day look? Free?…

Continue Reading Announcing The Best Behcet’s Awareness Day Celebration
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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