HAEi, is an international organization of patient organizations for those affected by C1-inhibitor deficiencies. During an HAE attack any part of the body can painfully swell.
When this swelling affects the abdomen or the throat, it can be life threatening. HAE is a rare disorder with no cure. It does have some very effective treatments which are among the most expensive in the world.
HAEi started HAE Day 🙂 to help raise awareness. HAE Day is May 16th. Watch the video blelow to learn more.
Want to share your smile for HAE awareness?
HAEi has created a campaign called Cover the World with Smiles. It provides a way to send happiness and HAE awareness around the globe. All you have to do is send in a picture or video with a personal message! Click here to participate!