Have you been this for somebody? Has someone done this for you? Even simple things can improve someone’s day and brighten their life, so why not try? KNowing someone’s breathing Easy because of you is a win win .
- Rare Disease News
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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!
