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Daily Archives: August 2, 2016

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Behcet’s, Fibromyalgia and Chronic Pain
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Behcet’s, Fibromyalgia and Chronic Pain

  • Post author:Farrah Fontaine
  • Post published:August 2, 2016
  • Post category:Behçet's/Rare Disease

Do you ever have those days where you're trying so hard to put one foot in front of the other, and then someone has the balls to ask you why…

Continue Reading Behcet’s, Fibromyalgia and Chronic Pain
This September Tell the World About IPF!

This September Tell the World About IPF!

  • Post author:Kristen Lord
  • Post published:August 2, 2016
  • Post category:IPF/Rare Disease

IPF Awareness Month is this September! Go to these links to get involved: Blowing Soap Bubbles #BlueUp4PF Proclaim it for your city or state. #WhereInTheWorldIsIPF Here are some links for…

Continue Reading This September Tell the World About IPF!
LDN – Low Dose Naltrexone – Why it is Recommended
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LDN – Low Dose Naltrexone – Why it is Recommended

  • Post author:Farrah Fontaine
  • Post published:August 2, 2016
  • Post category:Behçet's/Rare Disease

When you believe in fairy tales, anything is possible. When you believe in modern medicine, there are some limitations. However, the new use of low-dose naltrexone might seem like a…

Continue Reading LDN – Low Dose Naltrexone – Why it is Recommended
Meme: Authenticity in Illness

Meme: Authenticity in Illness

  • Post author:Rebekah
  • Post published:August 2, 2016
  • Post category:Rare Disease

This quote is by Patient Worthy Contributor Lisa D. check out some of her articles to learn more about her story: Meet Lisa D. The Best Thing You Can Do…

Continue Reading Meme: Authenticity in Illness
IPF Today Blog Review

IPF Today Blog Review

  • Post author:Farrah Fontaine
  • Post published:August 2, 2016
  • Post category:IPF/Rare Disease

It's no secret that a diagnosis of idiopathic pulmonary fibrosis, or IPF, can lead to a lot of STRESS. Of course, what is not good for chronic illnesses like IPF?…

Continue Reading IPF Today Blog Review
Why Scrubs Continues to Impress in the Rare Disease World

Why Scrubs Continues to Impress in the Rare Disease World

  • Post author:Patient Worthy Contributor
  • Post published:August 2, 2016
  • Post category:Amyloidosis/Lyme Disease/Rare Disease

It's no secret that Scrubs helped me get through Lyme treatment, as it is surprisingly profound. In Season 5, Episode 6 there is a very pleasant older woman who has…

Continue Reading Why Scrubs Continues to Impress in the Rare Disease World
La columna vertebral está conectada al… hueso del ojo?

La columna vertebral está conectada al… hueso del ojo?

  • Post author:Patient Worthy Contributor
  • Post published:August 2, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

¿Crees que sabes todo lo que hay que saber sobre la espondilitis anquilosante (EA)? Piensa otra vez. Una nueva investigación ha revelado que las personas con AS tienen un mayor…

Continue Reading La columna vertebral está conectada al… hueso del ojo?

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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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