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Daily Archives: September 29, 2016

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How to Be Brave and Laugh While Living With Dystonia
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How to Be Brave and Laugh While Living With Dystonia

  • Post author:Sabina Kennedy
  • Post published:September 29, 2016
  • Post category:Dystonia

Would you let a diagnosis of dystonia turn you inside out? Could it make you forget how to see the good in life? It may be time. Time to cue…

Continue Reading How to Be Brave and Laugh While Living With Dystonia
How These Cystic Fibrosis Care Centers Rock!
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How These Cystic Fibrosis Care Centers Rock!

  • Post author:Alisha Stone
  • Post published:September 29, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Kudos to the Cystic Fibrosis (CF) Foundation for building a mighty network of care centers for CF patients all across this great nation of ours! The Foundation has set forth…

Continue Reading How These Cystic Fibrosis Care Centers Rock!
More People Need to Be Like Jake Silverman
[Source: pixabay.com]

More People Need to Be Like Jake Silverman

  • Post author:James Ernest Cassady
  • Post published:September 29, 2016
  • Post category:Dystonia

You've gotta love it when someone takes a bad situation and makes the very best out of it. Jake Silverman and his family have done just that. At 10 years…

Continue Reading More People Need to Be Like Jake Silverman
Fall in Love with This Dystonia Blockbuster
Source: www,,pexels.com

Fall in Love with This Dystonia Blockbuster

  • Post author:Sabina Kennedy
  • Post published:September 29, 2016
  • Post category:Rare Disease

How many times did a blockbuster movie speak to you? There are profoundly important relationships forged between motion pictures and human behavior. Motion pictures do not have a fixed pattern…

Continue Reading Fall in Love with This Dystonia Blockbuster
How to Change a Country With a Loving Muckle-Wells Story
Pixabay

How to Change a Country With a Loving Muckle-Wells Story

  • Post author:Ellen Johnson
  • Post published:September 29, 2016
  • Post category:CAPS/Muckle-Wells Syndrome/Rare Disease

One of the first things every set of parents does when their precious baby is born is start looking for which traits have been handed down. Does she have her…

Continue Reading How to Change a Country With a Loving Muckle-Wells Story
Este increíble uso de radón te hará flipar

Este increíble uso de radón te hará flipar

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Piensas que el radón es un gas peligroso? Piense otra vez . Durante miles de años, las culturas de todo el mundo han estado utilizando aguas termales para curar todo…

Continue Reading Este increíble uso de radón te hará flipar

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Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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