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Daily Archives: October 12, 2016

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My Simple Truth About Cushing’s Disease
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My Simple Truth About Cushing’s Disease

  • Post author:Alisha Stone
  • Post published:October 12, 2016
  • Post category:Cushing Disease/Rare Disease

ATTENTION all of you go-getters and Sherlock Holmes peeps! I’m calling on my investigative peeps for some support! Here’s a challenge for ya to help the Cushing’s disease (and Cushing’s…

Continue Reading My Simple Truth About Cushing’s Disease
How This Acromegaly Research Will Change Rare Disease
Pixabay

How This Acromegaly Research Will Change Rare Disease

  • Post author:Farrah Fontaine
  • Post published:October 12, 2016
  • Post category:Acromegaly/Rare Disease

Everyone wants to know the secret to living longer. The Fountain of Youth. The Elixir of Life. The Philosopher's Stone. Well, researchers may have found the answer and they have…

Continue Reading How This Acromegaly Research Will Change Rare Disease
One Great Author is Huntington’s New Champion
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One Great Author is Huntington’s New Champion

  • Post author:PW Blogger
  • Post published:October 12, 2016
  • Post category:Huntington's disease/Rare Disease

For me, a good book has the ability to transport me to another place. I often find myself escaping within the pages to another world created by the author. Through…

Continue Reading One Great Author is Huntington’s New Champion
How These 12 Symptoms May Increase Your Risk of Cushing’s Disease
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How These 12 Symptoms May Increase Your Risk of Cushing’s Disease

  • Post author:Alisha Stone
  • Post published:October 12, 2016
  • Post category:Cushing Disease/Rare Disease

You may or may not know that Cushing’s disease can be challenging to diagnose because no two cases are exactly the same. People can experience symptoms or even a combination…

Continue Reading How These 12 Symptoms May Increase Your Risk of Cushing’s Disease
Quick Answers to Simple Dystonia Questions
[Source: pixabay.com]

Quick Answers to Simple Dystonia Questions

  • Post author:Sabina Kennedy
  • Post published:October 12, 2016
  • Post category:Dystonia

If you have dystonia, you know the following: The quirky urge. A funny tingle. That little voice in your head. These are your gut feelings talking. But what are they…

Continue Reading Quick Answers to Simple Dystonia Questions
La FDA aprueba PROCYSBI (R) para la cistinosis nefropática

La FDA aprueba PROCYSBI (R) para la cistinosis nefropática

  • Post author:Patient Worthy Contributor
  • Post published:October 12, 2016
  • Post category:Cystinosis/Rare Disease

Los padres que aman a sus hijos pueden apreciar cuando los tratamientos están disponibles para llevar la esperanza y la curación cuando sus crías están enfermos ... El 17 de…

Continue Reading La FDA aprueba PROCYSBI (R) para la cistinosis nefropática

Featured


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Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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