Meme: Earthquakes + Positivity

• Post author:Rebekah
• Post published:December 2, 2016
• Post category:Rare Disease

Sometimes it feels like nothing is going your way. Though it can be difficult, try to find the positive. Silver linings can make a world of difference.

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Editor’s Choice: Doctors Get Sick Too

• Post author:Patient Worthy Contributor
• Post published:December 2, 2016
• Post category:Ankylosing Spondylitis/mastocytosis/Myasthenia Gravis/Rare Disease/Tourette syndrome

Happy December Friends! Ah, the week after Thanksgiving is always easy for me knowing Christmas is just a few weeks away! This week, we have a story about a doctor with…

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[Source: Pixabay.com]

NMO: One Girl’s Courage Reveals the Hidden Truth and Inspires the World

• Post author:Alisha Stone
• Post published:December 2, 2016
• Post category:Devic's Syndrome (Neuromyelitis Optica)/Rare Disease

I just watched a YouTube video, posted by a sweet red-headed, freckly-faced teenager, who is living with neuromyelitis optica (NMO). NMO is a rare autoimmune, demyelinating disease that attacks people…

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[Source: Pixabay.com]

MSA – What You Don’t Know Might Cause a Misdiagnosis

• Post author:Erica Zahn
• Post published:December 2, 2016
• Post category:Multiple system atrophy (MSA)/Rare Disease

Multiple system atrophy (MSA), formerly known as Shy-Drager Syndrome, while rare, presents many different challenges, the first of which is finding a doctor who recognizes the symptoms. This can be…

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If They’re High, Find Out Why!

• Post author:Patient Worthy Contributor
• Post published:December 2, 2016
• Post category:Primary Biliary Cholangitis

Some disease processes shout at you- dramatic symptoms bring you immediately to medical care and treatment. However other unhealthy biological processes are more subtle and are likely to go undetected…

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[Source: Pixabay.com]

Living with Acromegaly and Symptom-Free, How Did She Do It?

• Post author:Lady Kehveen Abernathy
• Post published:December 2, 2016
• Post category:Acromegaly/Rare Disease

Isn't it it ironic that the rarest things in the world can also be the most severe? Acromegaly, for example. When she was only 23, Jillian was diagnosed with a…

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How to line your stomach in time for Thanksgiving Pixabay

Como proteger tu estomago en este dia de accion de gracias

• Post author:Patient Worthy Contributor
• Post published:December 2, 2016
• Post category:POTS/Rare Disease

Como alguien que está luchando con una enfermedad crónica, es probable que no es ajeno a los problemas estomacales que vienen junto con el tratamiento o simplemente una realidad de…

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