Avery’s Angels Gastroschisis Study
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Avery’s Angels Gastroschisis Study

Gastroschisis Study Cincinnati Children’s Medical Center, Texas Children’s Hospital, and Avery’s Angels are working together to try to learn more about the long-term gastrointestinal issues that people born with gastroschisis…

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Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot
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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot

Growing up, the young boy would always hear jets roaring over his neighborhood. This sparked his dream, his passion. Anthony Lickteig-Carter always hoped to become a pilot. Nevertheless, because of his condition,…

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The Strange Reason She was Born with Gastroschisis
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The Strange Reason She was Born with Gastroschisis

Suzanne Burt’s daughter Sofia, was diagnosed with gastroschisis while in the womb. Gastroschisis is a rare birth defect where the digestive organs are developed outside the stomach. Suzanne believes that her…

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Editor’s Choice: YAY for 21st Century Cures and a New ALS Development

It's Frida-yay Everyone! Celebrate it by catching up on this week's Editor's Choice. 'Tis the season of giving and we have a heartbreaking story on a case of gastroschisis that will…

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