Editor’s Choice: Sickle Cell Score and World PI Week Pets

Happy Friday Patient Worthians! Did you know it was World PI Week this week? We have a post on the role pets have with PI. We also have a story on a…

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Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot
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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot

Growing up, the young boy would always hear jets roaring over his neighborhood. This sparked his dream, his passion. Anthony Lickteig-Carter always hoped to become a pilot. Nevertheless, because of his condition,…

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Editor’s Choice: Consequences of Unintentional Exploitation in Rare Disease

Happy Spring Patient Worthians! This week we have pieces from two rare women, one battling the rare disease pemphigus vulgaris, part of the pemphigus and pemphigoid family. The other is…

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When Your Child Has Special Needs, So Do You! Seek Support.
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When Your Child Has Special Needs, So Do You! Seek Support.

Approximately one in 5,000 babies are born with a birth defect called gastroschisis. When a baby's intestines are protruding through a hole in the stomach wall resulting in the intestines being…

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Editor’s Choice: YAY for 21st Century Cures and a New ALS Development

It's Frida-yay Everyone! Celebrate it by catching up on this week's Editor's Choice. 'Tis the season of giving and we have a heartbreaking story on a case of gastroschisis that will…

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