Editor’s Choice: Dreaming of the Golden Years on Super Bowl Sunday

editor's choice

Got the post-Superbowl blues? Then check out these uplifting rare disease stories!

One amazing young woman with cystic fibrosis got a sweet shout-out on Super Bowl Sunday, and another older man with CF is proof that we are making great strides in treatment for the disease.

We also have a PW Contributor with dystonia with a self-empowerment message to help us through rare disease. Lastly, this cool chick with dysautonomia puts those of us withOUT it to shame!

So sit back and enjoy this week’s Editor’s Choice!



Ohio Twin with CF to Recieve Scholarship This Super Bowl Sunday

Last year, I got to interview an impressive young lady with cystic fibrosis.

Well, this past Sunday, she got presented a scholarship for college! Check out the update and her original interview here.

This Man is Proof: You Can Live with Cystic Fibrosis in the Golden Years

In the 70s, the life expectancy for a baby diagnosed with CF was about 14 years old.

Now, patients are living well into their 40s and beyond. Check out this story about a 70-year-old man with CF!

Self-Empowerment Tips for Healthy Living

PW Contributor Tom Seaman shares with us tips on how to live well with rare disease.

Read more here.

Find Out How a POTS Dreamer Becomes the Best!

As a spoonie, this story really resonates with me. Feeling like you want to do something great, but physically it’s not in the cards…

Read how this young woman doesn’t let her chronic illness stop her!




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