Got the post-Superbowl blues? Then check out these uplifting rare disease stories!
One amazing young woman with cystic fibrosis got a sweet shout-out on Super Bowl Sunday, and another older man with CF is proof that we are making great strides in treatment for the disease.
So sit back and enjoy this week’s Editor’s Choice!
Last year, I got to interview an impressive young lady with cystic fibrosis.
Well, this past Sunday, she got presented a scholarship for college! Check out the update and her original interview here.
In the 70s, the life expectancy for a baby diagnosed with CF was about 14 years old.
Now, patients are living well into their 40s and beyond. Check out this story about a 70-year-old man with CF!
PW Contributor Tom Seaman shares with us tips on how to live well with rare disease.
Read more here.
As a spoonie, this story really resonates with me. Feeling like you want to do something great, but physically it’s not in the cards…
Read how this young woman doesn’t let her chronic illness stop her!