How to Do IPF Support the Right Way

Our fears are debilitating things that rob us of our energy, our dreams, and our opportunity for redemption. They are very much like rubber bands—flinging us back and forth. And if you are living with idiopathic pulmonary fibrosis (IPF), you understand first-hand the thoughts of Robert Davidson, president of the Canadian Pulmonary Fibrosis Foundation, when he states:

“Living with IPF can be frightening and too few people appreciate just how isolating living with a rare disease like IPF can be.”

Fear can paralyze us, and there are potential consequences and impact that these fears can have on our lives. That’s why this video is a must see: What Do You Fear Most About Having Pulmonary Fibrosis?

It’s an important way for those who are affected by IPF to be heard, so that understanding and support for the IPF patient community continues to improve.

The Fear Disconnect

We all have fears, especially when it comes to illness or death. But, it’s important to understand our fears are what make us human.

I’ve often heard that our fears are actually blessings in disguise that not only help us to better understand our tendencies and motives, but also assist us with discovering new paths and opportunities.

I don’t know if I’m entirely convinced of this truth. But, I do know this about IPF support:

  • Talk about how you feel with your health care team. Talking to a professional counselor also can help. If you’re very depressed, your doctor may recommend medicines or other treatments that can improve your quality of life.
  • Join a patient support group. It may help you adjust to living with IPF. You can see how other people who have the same symptoms have coped with them. Talk with your doctor about local support groups or check with an area medical center.
  • Seek support from family and friends. It can help relieve stress and anxiety. Let your loved ones know how you feel and what they can do to help you.

How Can Others Help?

Sincerity and simple actions seem to be a theme that is important to calming the fears of IPF patients. Even if it is offering a hug, offering your company, or just giving them the gift of your time, all of those simple things are appreciated.


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