Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Monthly Archives: February 2017

  1. Home>
  2. 2017>
  3. February>
  4. Page 6
CF Siblings: It’s Complicated, But You Can Help This Family
[Source: pixabay.com]

CF Siblings: It’s Complicated, But You Can Help This Family

  • Post author:PW Blogger
  • Post published:February 1, 2017
  • Post category:Cystic Fibrosis/Rare Disease

There comes the time when families ask the question,"When should we have another baby?" After having one child, and knowing the responsibilities that you have to take on, it can…

Continue Reading CF Siblings: It’s Complicated, But You Can Help This Family
Two Centuries of Research Pays off for Eisenmenger Syndrome Patient
Source: www.pixabay.com

Two Centuries of Research Pays off for Eisenmenger Syndrome Patient

  • Post author:Erica Zahn
  • Post published:February 1, 2017
  • Post category:Eisenmenger syndrome/Rare Disease

In 1818, a novel was anonymously published in London by an 18-year-old author. It told the story of a scientist who was determined to bring a cadaver back to life…

Continue Reading Two Centuries of Research Pays off for Eisenmenger Syndrome Patient
Esta niña con distonía necesita tu ayuda en este momento
This little girl with dystonia needs your help!

Esta niña con distonía necesita tu ayuda en este momento

  • Post author:Patient Worthy Contributor
  • Post published:February 1, 2017
  • Post category:Dystonia/Rare Disease

¿Cuánto cree usted que la media niña de cinco años de edad, pesa? De acuerdo con kidshealth.org, la respuesta es aproximadamente 45 libras. Ahora, ¿cuánto cree usted que una silla…

Continue Reading Esta niña con distonía necesita tu ayuda en este momento
  • Go to the previous page
  • 1
  • …
  • 3
  • 4
  • 5
  • 6

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info