Help Us Raise Awareness About Adrenoleukodystrophy, or ALD!
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Help Us Raise Awareness About Adrenoleukodystrophy, or ALD!

The word adrenoleukodystrophy doesn't exactly roll off the tongue, does it? Adrenoleukodystrophy (ALD) is an exceptionally rare genetic disease that affects one in 18,000 males. If you're one of those 18,000 people,…

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What Are You Doing for Tuberous Sclerosis Complex Awareness Day?
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What Are You Doing for Tuberous Sclerosis Complex Awareness Day?

May 15th is TSC Global Awareness Day! Tuberous Sclerosis Complex (TSC) is defined as an inherited disorder that causes tumors to develop in vital organs. One million people worldwide are…

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Boy with Williams Syndrome is Among the San Bernadino School Shooting Victims
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Boy with Williams Syndrome is Among the San Bernadino School Shooting Victims

A few days ago on April 10, 2017, a terrible tragedy took place in San Bernadino, California. An angry gunman entered a special education classroom in North Park Elementary School and…

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Why Everyone Needs to Understand These Important But Simple Facts About IPF
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Why Everyone Needs to Understand These Important But Simple Facts About IPF

After watching a rather “dry” physician, a pulmonologist (I presume) on a video (you can watch it here), I felt like there was more to be had. This goes beyond…

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Urea Cycle Disorders: How Deadly Bacteria Could Save Your Life
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Urea Cycle Disorders: How Deadly Bacteria Could Save Your Life

G-M-O. Three letters guaranteed to spark lively, if not heated, debate amongst lifelong friends. These three letters, of course, stand for "genetically modified organisms." Why are they so controversial? Why…

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