If you’re a patient of rare disease, it’s nice to know that there are medical professionals out there fighting for you.
Check out what’s happening in the professional world of pulmonary hypertension below:
Who: The Pulmonary Hypertension Association
What: The 2017 PH Professional Network (PHPN) Symposium
When: October 5th – 7th, 2017
Where: North Bethesda, MD
Why: Pulmonary hypertension or pulmonary arterial hypertension is a chronic and progressive form of high blood pressure (hypertension) in the lungs that causes the pulmonary arteries to thicken or harden over time. Over time, the heart muscle weakens or becomes damaged, risking failure. There is no known cure and current treatment seeks to help manage the daily symptoms of the disease.
The Pulmonary Hypertension Association (PHA) is over 25 years old, making it the oldest and PH organization globally.
It has 16,000 members including patients, support persons and clinicians. While they work to spread awareness of the rare disease, their goal is to help those battling PH live longer, better quality lives. Ultimately, they strive to find a cure for PH. They provide support groups, online communities, a magazine, volunteer opportunities, educational opportunities and more! To help support them, click here.
This event is meant for medical professionals who treat this rare disease to share information with their peers, advocate on Capitol Hill for their patients, and continue the advancement in treatment for pulmonary hypertension. If you’re a medical professional who is interested in this event, click here.
