Happy Friday Patient Worthians!
It’s the week of the 2017 Global Genes Advocacy Summit, and we have the details for you.
First, we have a PW contributor’s take on conferences, a few developments in gene therapy, and the low-down on rare disease research.
We hope you enjoy this week’s Editor’s Choice.
A Rare Disease Conference is the Best Medicine to Overcome Loneliness
One of our awesome PW contributors knows the value of a rare conference.
Read more here.
A Rare Disease Research Rundown and How the Patient Voice Matters
What do you know about rare disease research, it’s challenges, and your role?
Read here to learn more.
2017 Global Genes Advocacy Summit Panel Highlights Whole Genome Sequencing
The 2017 GG Summit started out with a bang, educating us on the future of genome sequencing.
Get the highlights here.
