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Daily Archives: September 18, 2017

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September Pain Awareness Month Battles the Opioid Epidemic
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September Pain Awareness Month Battles the Opioid Epidemic

  • Post author:Minden Cantrell
  • Post published:September 18, 2017
  • Post category:Rare Disease

Nearly 100 million Americans live with chronic pain. That's a world of hurt. Chronic pain is defined as persistent pain that lasts more than three months. According to Johns Hopkins…

Continue Reading September Pain Awareness Month Battles the Opioid Epidemic
First Approved Fabry Treatment Option for Canadians in Nearly Fifteen Years
Source: Pixabay

First Approved Fabry Treatment Option for Canadians in Nearly Fifteen Years

  • Post author:Athena Lee
  • Post published:September 18, 2017
  • Post category:Fabry Disease/Rare Disease

Amicus Therapeutics is an American therapeutics company based in Cranbury, New Jersey. They're new groundbreaking treatment announcement, however, has very little to do with America, or even New Jersey for that…

Continue Reading First Approved Fabry Treatment Option for Canadians in Nearly Fifteen Years
iCan’t Believe It: Parkinson’s Tremors Calmed at Touch of a Button
[Source: pixabay.com]

iCan’t Believe It: Parkinson’s Tremors Calmed at Touch of a Button

  • Post author:Ronald Ledsen
  • Post published:September 18, 2017
  • Post category:Parkinson's Disease/Rare Disease

It’s fair to say that many (if not most) Americans are inseparable from their smart phones, and that a device that was pure sci-fi 25 or 30 years ago is…

Continue Reading iCan’t Believe It: Parkinson’s Tremors Calmed at Touch of a Button
Do You Know How China is Helping the Rare Disease World?
[Source: pixabay.com]

Do You Know How China is Helping the Rare Disease World?

  • Post author:Al Pendleton
  • Post published:September 18, 2017
  • Post category:Fabry Disease/Hemophilia/Rare Disease

Most people are familiar with the old adage, “The squeaky wheel gets the grease.” My grandmother used to go a bit further by pointing out, “But the greased wheel that…

Continue Reading Do You Know How China is Helping the Rare Disease World?
FDA Approval of First SMA Drug Brings Wealth of Emotions
Source: www.pixabay.com

FDA Approval of First SMA Drug Brings Wealth of Emotions

  • Post author:Al Pendleton
  • Post published:September 18, 2017
  • Post category:Rare Disease/Spinal Muscular Atrophy

Just days before Christmas 2016, the FDA gave a present to some of the children in the United States—they approved the first treatment ever to treat spinal muscular atrophy (SMA).…

Continue Reading FDA Approval of First SMA Drug Brings Wealth of Emotions
It’s a Boy! “Sticking Up” Against Cystic Fibrosis
[Source: pixabay.com]

It’s a Boy! “Sticking Up” Against Cystic Fibrosis

  • Post author:Lyssé Morganette
  • Post published:September 18, 2017
  • Post category:Cystic Fibrosis/Rare Disease

According to an article in The Campbell River Star, NHL stars, Rod Brind’Amour and Ryan Nugent-Hopkins of the Edmonton Oilers traded their hockey sticks for golf clubs (sort of)—all to…

Continue Reading It’s a Boy! “Sticking Up” Against Cystic Fibrosis

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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