Editor’s Choice: When the FDA Approves Drugs Just in Time for Thanksgiving

Happy Thanksgiving Patient Worthians!

While you’re still digesting, take a look at what we have in store for you this week.

If you have EDS, we have some exercise tips for you. We have the story behind Jackson’s honest chips and a story about a high school cheerleader kicking butt. Lastly, there was an exciting development in hemophilia news recently.

So sit back and enjoy this week’s Editor’s Choice.
The Dos and Don’ts of Exercising with Ehlers-Danlos Syndrome

Exercise therapy is commonly suggested by doctors for chronic conditions.

Read some tips from us that could help the conversation with your physician.

The Bittersweet Story Behind Jackson’s Honest Chips

One family’s struggle with a rare disease developed into something great.

Read more here.

After Two Decades, FDA Approves New Hemophilia Treatment

YAY! A new hemophilia treatment is underway.

Read about the latest approval here.

This High School Cheerleader is so Much More than Her Tourette Syndrome

It’s easy to feel defined by disease. But with persistence and motivation, this young woman surpasses her diagnosis.

Read more here.


Do you have a rare disease experience of your own? Share with us here.
Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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