Happy Groundhog Day, Patient Worthians!
It might not feel like it, but spring is its way!
This week, we have a story of a family who copes with the challenges of MCAS through music, a virus that could help treat brain cancer, an FDA acceptance letter, and a legal battle over a disagreement between a patient’s parents and doctors.
So sit back and enjoy this week’s Editor’s Choice.
Braving the Storm: How Music and Family Helped Tara Get Through a Tough, Rare, Little-Known Disease
Mast cell activation disorder is a tough and isolating diagnosis. One family fought the challenges through music.
Check out her song here.
Reovirus: An Unlikely Ally in the Battle Against Brain Cancer
Typically, we think of viruses as something that harm our health, not a tool to fight cancer.
Read more about the latest developments here.
ICYMI: GW Pharmaceuticals Gets FDA Acceptance Letter for New Drug Review
Families who struggle with LGS and Dravet syndrome have been waiting for a new treatment, and one might be on the way.
Read about her experience here.
Parents Sue Hospital and Social Services Over Treatment Of Their 11-Year-Old Daughter with Rett Syndrome
Who should determine what is in the best interest of young patients– parents or hospitals?
Read the details here here.
