It's no longer Valentines Day, but we're still sending love to the rare patient community! It's been an exciting week for Hemophilia B patients waiting for a new treatment! We…
Multiple sclerosis represents one of the leading causes of disability in young adults. It’s an autoimmune condition that eats away at parts of the body’s nerve cells. Recent research by…
Multiple myeloma is a cancer of the blood that develops in the plasma cells found in soft tissue at the center of the bone, called bone marrow. Bone disease is…
According to a story from wncn.com, Seneca Ottey was diagnosed with esophageal cancer at sixty years old. Seneca was the father of Michelle Urban, who works as a pharmacist in…
In a lot of ways, MacKenzie Bozeman looks like every other child. She seems joyful, and energetic. She gives her parents plenty to keep up with. It would be almost…
Michael Mavis, a fitness trainer from Granville, Michigan, recently experienced flu like symptoms leading to paralysis, later learning it was much more than a mild sickness, reported Grand Rapids Patch.…
February is Turner Syndrome awareness month! Turner Syndrome is a chromosomal condition that affects approximately one in every 2,000 women. The condition occurs when a woman lacks all or part…
Michelle Myers, a mother of seven and American citizen who has never been out of the country, suffers from a rare disease that causes her to wake up with different…
This Wednesday, the last day of February is internationally-recognized Rare Disease Day - a day when we realize that in fact - rare diseases are not so rare. There are…
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