Editor’s Choice: Updates on a Lung Disease Mystery and Why You Should Always Brush Your Teeth

It’s no longer Valentines Day, but we’re still sending love to the rare patient community!

It’s been an exciting week for Hemophilia B patients waiting for a new treatment! We also have news about rare drug coverage in British Columbia, answers to an IPF mystery, and an article about the connection between gum disease and pancreatic cancer.

Sit back and enjoy this week’s Editor’s Choice.

A New Treatment For Hemophilia B Just Became Available

Rebinyn received FDA approval in 2017, and is now available in some markets.

Check it out here.

Researchers Have Discovered The Genetic Cause of Idiopathic Pulmonary Fibrosis

Idiopathic Pulmonary Fibrosis refers to Pulmonary Fibrosis that doesn’t have a clear cause– until now.

Read more about it here.

Multiple Rare Disease Drugs Just Got Limited Coverage in British Columbia

Here’s the latest update on rare drug coverage in British Columbia, concerning conditions such as HAE, MS, and cystic fibrosis.

Read about it here.

The Link Between Pancreatic Cancer and Gum Disease Just Got Stronger

We all know that it’s important to brush your teeth, but did you know oral hygiene might prevent pancreatic cancer?

Read about it here.


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