Happy Rare Disease Week, Patient Worthians! As we wind up after a week of celebrating the rare patient community, support networks, and advocacy, we want to highlight four rare disease…
According to a story from MSN, Heather Huus is living life without a stomach. This may seem impossible, but keeping her stomach could have made things far worse for her.…
Last month, 125 rare disease patient organizations sent a letter to Medicaid directors from individual states highlighting the importance of Medicaid access for rare disease patients. "As organizations representing millions…
A strain of bacteria found in milk may trigger the development of rheumatoid arthritis in people who are already at risk genetically. Over a million adults in the United States…
Corbus Pharmaceuticals has received the Development Award presented by the Cystic Fibrosis Foundation, along with $25 million to support an upcoming study, reports Financial Buzz. Corbus plans to test out…
According to an article from Khon2, locals on Honolulu Island in Hawaii are starting to raise concerns after the children of three firefighters from the Waipahu Fire Station were diagnosed…
According to Yahoo! News UK, cancer survival rates have increased over the passed ten years. However, the progress hasn't been evenly distributed across the board of varying cancers. According to…
Dena Winchester, a sophomore at Rutgers University, faces the struggles that come with her condition by advocating for change, reports New Jersey Jewish News. After she was diagnosed with lipodystrophy…
According to a story from ABC News, medical researchers are beginning to monitor the long term health of people that have donated one of their kidneys. A kidney transplant can…
An exciting "win" in the relatively common glaucoma department could also mean a "win" for rare childhood glaucoma patients. According to an article from MedicalXpress, two recently approved treatments for…
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Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.