Over 100 Organizations Speak Up For Medicaid Access for Rare Disease Patients
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Over 100 Organizations Speak Up For Medicaid Access for Rare Disease Patients

Last month, 125 rare disease patient organizations sent a letter to Medicaid directors from individual states highlighting the importance of Medicaid access for rare disease patients. "As organizations representing millions…

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College Student with Lipodystrophy Advocates for a Change in Genetic Testing
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College Student with Lipodystrophy Advocates for a Change in Genetic Testing

Dena Winchester, a sophomore at Rutgers University, faces the struggles that come with her condition by advocating for change, reports New Jersey Jewish News. After she was diagnosed with lipodystrophy…

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Transplants Can Be Essential For People With Chronic Kidney Disease. But What Are The Consequences For Donors?
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Transplants Can Be Essential For People With Chronic Kidney Disease. But What Are The Consequences For Donors?

According to a story from ABC News, medical researchers are beginning to monitor the long term health of people that have donated one of their kidneys. A kidney transplant can…

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