Patient Worthy is proud to announce some new features to our website!

Thanks to your valuable feedback, we have now enabled the personalization of your homepage to emphasize the news around diseases and conditions that you care most about. For directions on how to do that, click here.

Additionally, you can now submit articles directly through the site! In order to contribute, your profile must have a first and last name, and an author bio associated with the article. Before you submit, check out our submission guidelines and be sure to read our Privacy Policy and Terms of Use, which features our Contributor Agreement.

The guidelines are the same as when you submitted content through e-mail; we will review all posts before publishing, but we want your authentic voice and descriptions to be unaltered by us. If we recommend changing anything outside of grammar, typos, misspellings, headings, or extreme profanity, we will email you with our suggested edits for your approval before we publish.

If you have any questions, reservations, or need help with editing your article, please reach out to us at [email protected].

We hope to continue to add more ways to engage with the rare community through our site. But for now, we are looking forward to these new features. So try them out today by going to www.patientworthy.com/login!

What are your thoughts on the results of this study? Share your stories, thoughts, and hopes, with the Patient Worthy community!