Happy Last Day of August!
As we get ready for the autumn, we want to highlight four articles. We have an article about the Zebra Ball fundraising for EDS advocacy, and some treatment news for people with Limb Girdle Muscular Dystrophy. We also have a patient contribution on making your voice heard at the ER, and a review of the new Netflix show, Afflicted.
Sit back and enjoy this week’s Editor’s Choice.
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Ehlers-Danlos Society Dazzles at the Zebra Ball
Ehlers-Danlos syndrome isn’t rare, but it’s rarely diagnosed. The Ehlers-Danlos society is working to change that.
Check out our coverage here.
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Ribitol Could Benefit Patients With Rare Limb Girdle Muscular Dystrophy and Related Diseases
In need of some good news? Ribitol looks like a promising treatment for people with this type of muscular dystrophy.
Read about it here.
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How Being a Good Patient Nearly Killed Me
You might have to disagree with doctors if you want to get the treatment you need.
Read more here.
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Episode One of Afflicted – A New Netflix Series on Chronic Illness
Thinking about checking out Netflix’s new show on chronic illness? Here’s our take on it.
Check out the story here.
[/one_half_last] [one_half]We hope you enjoy this week’s Editor’s Choice posts! Don’t forget to share!
Do you have a rare disease experience of your own? Share with us here.
