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Daily Archives: September 6, 2018

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Woman Records Her MS Seizure to Raise Awareness

Woman Records Her MS Seizure to Raise Awareness

  • Post author:Samuel Sachs
  • Post published:September 6, 2018
  • Post category:Multiple Sclerosis

According to a story by The Health Pundit, one woman showed a bold new way to spread awareness for multiple sclerosis. Kate Langwine-Cooke filmed her experience of a seizure. The…

Continue Reading Woman Records Her MS Seizure to Raise Awareness
Promising Results for Early Detection of Lung Cancer From New Blood Tests

Promising Results for Early Detection of Lung Cancer From New Blood Tests

  • Post author:Samuel Sachs
  • Post published:September 6, 2018
  • Post category:Cancer

According to a report by American Health and Drug Benefits, a new blood test may change cancer screening. The new test would allow for earlier detection than current techniques. Supporting…

Continue Reading Promising Results for Early Detection of Lung Cancer From New Blood Tests
Could Drug Pricing Regulations in Canada Endanger Rare Disease Patients?
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Could Drug Pricing Regulations in Canada Endanger Rare Disease Patients?

  • Post author:James Moore
  • Post published:September 6, 2018
  • Post category:Rare Disease

According to a story from sectorpublishingintelligence.co.uk, a study from the Fraser Institute suggests that the Canadian government's initiative to more closely control the pricing of drugs could place access to…

Continue Reading Could Drug Pricing Regulations in Canada Endanger Rare Disease Patients?
Transition Program Helps Young Patients Navigate Adult Health Care

Transition Program Helps Young Patients Navigate Adult Health Care

  • Post author:Samuel Sachs
  • Post published:September 6, 2018
  • Post category:Spina Bifida

According to a report by CTV News of Calgary, a new trial program is attempting to make transitions easier for people living with chronic conditions. Specifically, the program hopes to…

Continue Reading Transition Program Helps Young Patients Navigate Adult Health Care
Meet Tony: Parkinson’s Advocate by Way of Facebook

Meet Tony: Parkinson’s Advocate by Way of Facebook

  • Post author:Jean Martell
  • Post published:September 6, 2018
  • Post category:Parkinson's Disease/Rare Disease

Facebook and social media has garnered a lot of attention the last handful of years – and largely for negative reasons. At this point, when you think of Facebook, the…

Continue Reading Meet Tony: Parkinson’s Advocate by Way of Facebook
The Norwegian-Based Centre Frambu is Helping Families with Rare Disorders
ar130405 / Pixabay

The Norwegian-Based Centre Frambu is Helping Families with Rare Disorders

  • Post author:Anna Hewitt
  • Post published:September 6, 2018
  • Post category:Rare Disease

The information in this article is sourced from this leaflet from Frambu and this publication from Eurordis. You can also visit Frambu’s website by clicking here. Frambu is a national centre…

Continue Reading The Norwegian-Based Centre Frambu is Helping Families with Rare Disorders
Inclusive Karate in Canada!
source: pixabay.com

Inclusive Karate in Canada!

  • Post author:Trudy Horsting
  • Post published:September 6, 2018
  • Post category:Cerebral Palsy

As a teacher, It’s not unique to have a kid with a disability in your class. But sometimes it’s hard to know how to adjust your curriculum in order to…

Continue Reading Inclusive Karate in Canada!
Wearable Technology Gives ALS Patients Their Voices Back

Wearable Technology Gives ALS Patients Their Voices Back

  • Post author:Samuel Sachs
  • Post published:September 6, 2018
  • Post category:Amyotrophic Lateral Sclerosis/Rare Disease

According to a report by wearable-technologies.com, people living with ALS may soon enjoy a new method of communication. A new technology, known as EyeControl, plans to provide a way for…

Continue Reading Wearable Technology Gives ALS Patients Their Voices Back
For Vasculitis Patients, Rheumatologists Can Play a Vital Role
FreePhotosART / Pixabay

For Vasculitis Patients, Rheumatologists Can Play a Vital Role

  • Post author:James Moore
  • Post published:September 6, 2018
  • Post category:Rare Disease/Vasculitis

According to a story from The Rheumatologist, rheumatologists, as specialists in autoimmune disease that can affect multiple body systems, are in a key position to diagnose and treat vasculitis. In…

Continue Reading For Vasculitis Patients, Rheumatologists Can Play a Vital Role

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