According to a story from the Los Angeles Daily News, for children with debilitating rare illnesses like cerebral palsy, epilepsy, or muscular dystrophy, it can often take a long time…
According to a story from news-medical.net, a team of scientists from Delaware have recently released a study in the journal BMC Bioinformatics. In this study, the researchers found that patters…
Although having a child with disabilities is no doubt stressful, the stress and worry does not necessarily lessen as the child grows older. As children with disabilities age towards adulthood…
I am a caregiver mom to my two special needs, young adult, rare disease kids. I am also a recent widow; previously, I was a caregiver wife to my very…
According to a story from polygon.com, Microsoft has developed a new Xbox Adaptive Controller that is tailored towards players that have reduced use of their hands and fingers. While there…
Content warning: discussion of ableism and eugenics A woman is suing the Japanese government over her forced sterilisation four decades ago. This is the first case to be brought against…
Recent news from Apple shows a new series of emojis coming with the next iOS update. The set intends to “better represent individuals with disabilities.” To accomplish this, Apple partnered…
According to a story from Wave Newspapers, Danielle Guinn, a woman diagnosed with cerebral palsy and epilepsy, is not letting her disability slow her down, and is currently participating in…
Maddie Holt from Everett Washington is a 5-year-old with severe disabilities. She can barely hear or see, and she certainly can't walk or talk, reports Maine Public. Unfortunately for her,…
"Ok, well first of all...I know nothing. But if your kids are anything like me, they're going to break a lot of toilets!" Those are the starting words writer and…
According to a story from The Irish Times, the South Tipperary General Hospital issued a second apology in court after providing insufficient care to a girl named Katie Manton, who…
Duke Health just reported that in a recent study, children with cerebral palsy may show improvements from an infusion of their own umbilical cord blood. Recently, a clinical trial including…
London specialists at the King's College hospital believe they should take an 11-month-old baby Isaiah suffering from multiple diseases off life support to avoid any further pain, reported The Guardian.…
Margarita Matias could not believe her eyes when she walked into the newly renovated bathroom. Her old bathroom was far from ideal, and often leaked. The new arrangement is optimized…
I am always incredibly inspired by the people that don’t allow their rare diseases to prevent them from doing what they love. Whether it’s been Charity Tillemann-Dick with opera or Olivia…
According to a story from tennessean.com, Trishia Warrick, a Michigan native, moved down to Tennessee when she was in eighth grade. Sadly, she never felt very welcome growing up in…
It's been two years since the Zika outbreak and now, two-year-olds born with microcephaly due to the infernal outbreak, are still suffering through long-term problems. Children who developed health problems…
Growing up, my brother and I had a fun playhouse in our backyard with a huge slide and swings. We had the best times on that playhouse, playing games together…
Lawyers in Texas were enraged. They demanded the government give a 10-year-old girl with a rare disease back to her family. Rosa Maria Hernandez is a 10-year-old girl with cerebral…
It seems every disease has its day. According to the fabulous website World CP Day, for cerebral palsy (CP) that day is October 6. More than 17 million people around…
Most kids love robots. So the idea that a kid with cerebral palsy (CP) could improve the way he or she walks with the help of a robot is just…
A new study pinpoints faulty genes as another potential cause behind hemiplegic cerebral palsy. Until now, there was an insufficient amount of information to verify that genetics was part of…
You know that feeling when someone says a word that you don’t understand? It happens to people all the time. It might be your accountant right before tax time. It…
Cerebral palsy (CP) is caused by brain lesions that are non-progressive, meaning the lesions don't cause the brain to further deteriorate. It causes impairment of motor function—the ability to control motion…
The first time I encountered him, I stared at him, mouth agape with genuine shock on my face. He could not fail to notice my expression. Thankfully, he didn’t take…
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