Editor’s Choice: Finding Purpose and Connection with Rare Diseases

Happy Friday Everyone!

As we get ready for the weekend, we want to spotlight four articles. We have an article about a man with Parkinson’s who uses social media to benefit the community, as well as an update an MS categorization. We also have two PW contributions– one story by the husband of a woman with CRPS and scleroderma, and one article from a cystinosis patient.

Sit back and enjoy this week’s Editor’s Choice.

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Meet Tony: Parkinson’s Advocate by Way of Facebook

Parkinson’s can be an isolation disease. Here’s how Tony is working to change that.

Check out his take here.

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Researchers Have Discovered a New Sub-Category of Multiple Sclerosis

Multiple sclerosis might not fit quite as neatly into the existing diagnosis boxes as people used to think.

Read about it here.

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Giving Back: A Patient Story

After Patrick’s wife, Gina, received rare diagnoses, their lives changed in ways they never expected.

Read more here.

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Finding Life’s Purpose With Cystinosis: Rebekah Palmer’s Story

Rare diseases like cystinosis will change a person’s life. PW Contributor Rebekah didn’t find herself on the same path as others around her, but some soul searching helped her discover her purpose.

Check out the story here.

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Do you have a rare disease experience of your own? Share with us here.

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