Happy Friday!
As the week comes to a close, we want to spotlight four articles. We have advice from a patient with CVID who learned how to manage her condition while living abroad, and an interview with a PBC patient who speaks about the benefits of virtual therapy. We also have news on MDS biomarkers and a clinical trial for EB.
Sit back and enjoy this week’s Editor’s Choice.
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Living Abroad with CVID
A rare disease can make moving international challenging, but some tips can make it easier. PW Contributor Jennifer shares her story.
Check out her take here.
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Multiple Studies Help Define New Biomarkers for Myelodysplastic Syndromes
Looking for new MDS research?
Read about it here.
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Can Online Therapy Benefit Rare Disease Patients?
Rare diseases often bring emotional challenges, but going to therapy in person can be costly, time-consuming, and inaccessible. How can online therapy help?
Read more here.
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A Clinical Trial for Epidermolysis Bullosa Can Go Ahead in the US
If you know someone with EB, you know how badly new treatment options are needed. This clinical trial brings the community hope.
Check out the story here.
[/one_half_last] [one_half]We hope you enjoy this week’s Editor’s Choice posts! Don’t forget to share!
Do you have a rare disease experience of your own? Share with us here.
