Editor’s Choice: Sea Sponges, Reality TV, and Rare Patient Opinions

Happy Thursday!

We hope everyone’s week is going well. Today, we’re highlighting a contribution from a cystinosis patient on the necessity of third-party medical providers. We’re also sharing a story about how a sponge may help people with ovarian culture, and an update on a Prader-Willi trial. Last but not least, we have an opinion piece discussing CF and the Bachelor.

Sit back and enjoy this week’s Editor’s Choice.

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Third Party Medical Providers: a Necessity for the Right to Life

PW Contributor Rebekah Palmer explains why patients depend on third part medical providers.
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New Discovery in Marine Sponge May Lead to a New Ovarian Cancer Treatment

Ovarian cancer has notoriously low survival rates- could this research help lead to a better prognosis?

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Phase 2a Prader-Willi Syndrome Trial Enters Open-Label Extension

Following along with this PWS clinical trial? Here’s an update.

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I’m Glad The Bachelor is Bringing Attention to Cystic Fibrosis, But I’m Probably Not Donating to Colton’s Foundation

This year’s star on the Bachelor started a foundation to support Cystic Fibrosis. Some people have been asking: how effective is this organization?

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Do you have a rare disease experience of your own? Share with us here.

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