NZ Family Races Against the Clock to Fundraise for Son’s Rare Disease Treatment
Nash Jones is 18 months old and he is battling against the clock for a better quality of life. Nash Jones has a very rare genetic disease called Lesch-Nyhan syndrome.…
Nash Jones is 18 months old and he is battling against the clock for a better quality of life. Nash Jones has a very rare genetic disease called Lesch-Nyhan syndrome.…
Stephanie Hosford was recently interviewed by CURE (Cancer Updates Research and Education) about what she now calls her “three crazy days”. The title of her book is “Bald, Fat and…
The Atlantic featured this incredible story about the possibilities of using genetically altered piglets as avatars for children with genetic diseases. Furthermore, the article delves into the personal story of one…
Amyotrophic Lateral Sclerosis (ALS) stops communication between the brain and voluntary muscles. Patients slowly lose muscle strength, affecting their ability to walk, talk, and even breathe. The illness eventually results…
Dr. Louis J. DeGennaro, who is the CEO and President of the Leukemia & Lymphoma Society, has recently contributed a blog post on the organization's website. In this post, Dr.…