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Daily Archives: March 5, 2019

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New Partnership Aims to Establish Global Rare Disease Center
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New Partnership Aims to Establish Global Rare Disease Center

  • Post author:James Moore
  • Post published:March 5, 2019
  • Post category:Rare Disease

According to a story from news-medical.net, the University Hospitals in Cleveland, Ohio and the University of Oxford have recently announced their plans for a multi-year affiliation. The goal of this…

Continue Reading New Partnership Aims to Establish Global Rare Disease Center
Family Affected by Batten Disease Raises Hundreds of Thousands Towards Research
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Family Affected by Batten Disease Raises Hundreds of Thousands Towards Research

  • Post author:James Moore
  • Post published:March 5, 2019
  • Post category:Batten Disease/Rare Disease

According to a story from Statesman Journal, nine year old Haley Pollman isn't so different from most other girls her age. She loves dresses, Barbie dolls, and animals, and still…

Continue Reading Family Affected by Batten Disease Raises Hundreds of Thousands Towards Research
Ireland Lags Behind the Rest of Europe in Approving Rare Disease Drugs
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Ireland Lags Behind the Rest of Europe in Approving Rare Disease Drugs

  • Post author:James Moore
  • Post published:March 5, 2019
  • Post category:Rare Disease/Spinal Muscular Atrophy

According to a story from The Irish Times, a recent report issued by the Irish Pharmaceutical Healthcare Association (IPHA) indicates that Ireland trails many other European countries in approving new…

Continue Reading Ireland Lags Behind the Rest of Europe in Approving Rare Disease Drugs
Recent Efforts by Genetic Alliance UK to Improve Drug Development for Rare Disease

Recent Efforts by Genetic Alliance UK to Improve Drug Development for Rare Disease

  • Post author:Trudy Horsting
  • Post published:March 5, 2019
  • Post category:Tuberous Sclerosis

Not only are rare diseases well, rare, but the same rare disease can also affect different patients in a multitude of ways. For instance, some diseases can impact many different…

Continue Reading Recent Efforts by Genetic Alliance UK to Improve Drug Development for Rare Disease
New Tool Has the Potential to Identify the Genetic Causes of Rare Diseases
skeeze / Pixabay

New Tool Has the Potential to Identify the Genetic Causes of Rare Diseases

  • Post author:James Moore
  • Post published:March 5, 2019
  • Post category:Neuroblastoma/Rare Disease

According to a story from news-medical.net, a research team affiliated with Princeton University has been hard at work developing a unique tool that utilizes machine learning in order to help…

Continue Reading New Tool Has the Potential to Identify the Genetic Causes of Rare Diseases
Treatment Strategies for Younger Multiple Myeloma Patients
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Treatment Strategies for Younger Multiple Myeloma Patients

  • Post author:James Moore
  • Post published:March 5, 2019
  • Post category:Multiple Myeloma/Rare Disease

According to a story from ASH Clinical News, the treatment of younger patients with multiple myeloma, a form of rare blood cancer, requires physicians to take into account certain factors…

Continue Reading Treatment Strategies for Younger Multiple Myeloma Patients
People Testing Positive for ANCA Antibodies Might Not Have Vasculitis

People Testing Positive for ANCA Antibodies Might Not Have Vasculitis

  • Post author:Scott Carlson
  • Post published:March 5, 2019
  • Post category:Vasculitis

According to a publication from ANCA Vasculitis News, a sizable number of people who do not have ANCA-associated vasculitis could falsely test positive due to the presence of the associated…

Continue Reading People Testing Positive for ANCA Antibodies Might Not Have Vasculitis
Adverum Releases Preclinical Data of Experimental Wet AMD Drug
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Adverum Releases Preclinical Data of Experimental Wet AMD Drug

  • Post author:Scott Carlson
  • Post published:March 5, 2019
  • Post category:Rare Disease

A press release put out last month by American pharmaceutical company Adverum Biotechnologies announced some of the long-term preclinical safety data collected about their experimental drug ADVM-022. The drug hopes…

Continue Reading Adverum Releases Preclinical Data of Experimental Wet AMD Drug

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