Editor’s Choice: Grief, Loneliness, and Financial Pressures of Rare Disease

Happy Wednesday Everyone!

We hope everyone had a good St Patrick’s Day. Today, we’re highlighting a story from PW contributor Denise Crompton on grief. This is followed by an article on the prevalence of loneliness in the rare community. Next we have two stories about rare disease financial issues.

Sit back and enjoy this week’s Editor’s Choice.

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After the One You Have Been Caring for Dies, Life Changes Dramatically

When you’re a caregiver, your life is shaped around the person you love. What happens after they pass?

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Loneliness in a Rare Disease Diagnosis: A Different Kind of Co-Morbidity

As many patients know, the challenges of a rare disease go far beyond physical symptoms.

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American Cancer Patients are Being Bankrupted by their Treatment

Cancer is emotionally and physically challenging… and it’s also expensive!

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How Changing to Outcome-Based Reimbursement Models is Better for Rare Disease Patients

Is the current reimbursement model the best option?

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Do you have a rare disease experience of your own? Share with us here.

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