The International Society for Mannosidosis & Related Diseases (ISMRD) serves as an international patient advocate for those living with glycoprotein storage diseases. These include alpha-mannosidosis, fucosidosis, mucolipidosis type II, mucolipidosis type III, mucolipidosis type IV, Schindler disease, and Sialidosis among others.
Their 6th International Conference for Glycoprotein Storage Diseases will be held July 25th through 27th, 2019 for patients, parents, families, caregivers, doctors, medical students, researchers, and other healthcare professionals.
Early Bird registration ends April 30th, 2019 so don’t wait to sign up!
This conference will be held in Atlanta, Georgia. This years theme is “Translating Scientific Discovery into Therapies.” To learn more about this years speakers and conference itinerary, you can click here.
Prices range from 0 dollars for patients to 475 dollars for pharmaceutical representatives. However, prices also vary significantly between the Early Bird rate and registration which occurs after April 30th. There are also scholarships available for families which you can learn more about here. To support these scholarships, click here.
There is accommodation secured specifically for the conference. Rooms are 181 dollars per night, including all taxes. If you need an Accessible Room, ISMRD asks you to submit your request through them directly.
You can register for the conference by clicking here.
You can read more details about the conference here.
This conference is a great opportunity to learn more about recent research in glycoprotein storage diseases and to connect with other families dealing with similar conditions as yourself. You won’t want to miss this opportunity!