Editor’s Choice: Four Stories of Hope, Strength, and Promise

Happy Thursday!

We hope everyone’s spring is off to a good start! As the weather warms up, we’re sharing stories demonstrating patient hope, strength, and resilience. We start with a story about Anna, an SMA patient, followed by an article about promising SCID news. Next, we have an app made by an incredible teen, and an uplifting story about patient with Lupus.

Sit back and enjoy this week’s Editor’s Choice.

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Patient Spotlight: Anna Landre

 

We had the honor of speaking with Anna, a woman with SMA advocating for those with disabilities.

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Eight Children with Severe Combined Immunodeficiency Cured with Gene Therapy

 

Big news– both for the SCID community and gene therapy as a whole!

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“Ability App” Created by 14-Year-Old Launching This Year to Aid Those Living With Disabilities

Alex, a teenager in Idaho, is blowing us away with his advocacy for people with disabilities.

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Lupus Patient Finally Meets the Stranger Who Saved Her Life by Donating a Piece of His Liver

Madison had never met Jaelin- but he saved her life.

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Do you have a rare disease experience of your own? Share with us here.

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