Cure GM1 Foundation is hosting a family meeting filled with hope on Friday, September 20th! This gathering will be focused on community, clinical development and research updates, patient advocacy, and inspiration in beautiful San Diego, CA, near Sea World, Legoland, and the San Diego Zoo.
Updates on the Axovant and Passage Bio clinical trials will be provided, as well information on the UPenn Orphan Disease Center and NIH Natural History Studies, and more. See full agenda, speaker details, and information regarding childcare, hotel reservations, travel and activities at www.curegm1.org. Don’t miss this chance to connect with other GM1 patients and families in person and speak to the researchers and professionals from biotech working on GM1 Gangliosidosis!
Registration is FREE! Click here to register or visit www.curegm1.org. Registration deadline: September 13th For additional information, please contact Jessica Quintilian: [email protected]
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