Editor’s Choice: Pop Stars, PKD, and Protecting Patient Boundaries

Happy October!

This week, we’re sharing an article on a PKD treatment update. We also have news about a famous singer who shared her rare disease story recently, a piece discussing boundaries and consent, and a story about a woman who spent years looking for a diagnosis.astrological signs.

Sit back and enjoy this week’s editor’s choice.

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New Therapy in Development for PKD

If you’re affected by polycystic kidney disease, check out this new potential treatment.

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Sia Speaks Out About Her Struggles With Ehlers Danlos Syndrome

Sia uses her platform to raise awareness for this under-diagnosed condition.

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When is a yes a yes, and when is it an ‘I can’t say no’? For Persons with Disabilities, Consent is Complicated

For people with disabilities, maintaining boundaries is a complex issue. This article explores some of the questions and risks to keep in mind.

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After a Childhood Plagued by Illness, This Woman Was Finally Diagnosed With Mitochondrial Disease

Too often, it takes years and years to find a diagnosis– this woman finally has answers.

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Do you have a rare disease experience of your own? Share with us here.

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