Happy Friday, readers!
We hope everyone’s staying warm! This week we’re highlighting a new patient story from a rare disease parent in the Czech Republic. Next, we have ann article offering insight into why symptoms appear more severe some patients and less severe in others, followed by news on the national vaping-related injury crisis. Last but not least, we have an article about a mother facing sudden paralysis. So sit back and enjoy this week’s editor’s choice.
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Life as a Parent of a Child With Glycogen Storage Disease: A Rare Disease Story From the Czech Republic
The most recent installment in our stories from patients in the Czech Republic is here!
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Symptom Severity in Rare Disease Varies by Patients: Genetics May be to Blame
Have you ever wondered why one person with your condition has really different symptoms than you do? The answer may be in your genes.
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Teen Gets the First Ever Double Lung Transplant Due to Vaping Associated Lung Injury
Vaping injuries have been in the news lately– this treatment offers hope to those affected.
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Woman Faces Temporary Paralysis After Being Diagnosed with Guillain-Barre Syndrome
A young mother faces a journey of paralysis and recovery.
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