Happy Thursday!

This week, we’re highlighting a story about a boy in Texas whose illness sparked concern about bacterial meningitis. Next, we have a piece from PW contributor Rebekah Palmer on adulthood with a rare disease, and a story about HCU patient Jessica. After that, we have the story of two sisters with the same disease but very different outcomes. Check out our editor’s choice!
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Bacterial Meningitis: Warning Signs and Who Could be at Risk

After tragedy struck the family of a five-year-old, concern about bacterial meningitis has increased in Texas.
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Let’s Have A Conversation About What Affects Adults With Rare Disease

 

Navigating adulthood while managing a rare disease is tricky– PW contributor Rebekah Palmer provides insight.
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HCU isn’t an allergy: Jessica’s Homocystinuria Story

HCU isn’t an allergy– it’s a metabolic disorder that can create symptoms throughout the body.
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Two Sisters With Spinal Muscular Atrophy Had Very Different Outcomes

 

Why did one sister receive more effective treatment than the other?
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We hope you enjoy this week’s Editor’s Choice posts! Don’t forget to share!

Do you have a rare disease experience of your own? Share with us here.