Bridging the Voice of ALS Patients | Atsdr

Bridging the Voice of ALS Patients | ATSDR
Bridging the Voice of ALS Patients Because learning more about ALS is an important step in the battle to defeat it, the National ALS Registry gathers confidential health information from people who are living with the disease to learn more about what causes ALS and possibly lead to better treatments. Amyotrophic lateral sclerosis (ALS) is a fatal neurological disease that attacks the nerve cells. The cause of ALS is unknown, and there is no known cure.

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Rose Duesterwald

Rose Duesterwald

Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia four years ago. He was treated with a methylating agent While he was being treated with a hypomethylating agent, Rose researched investigational drugs being developed to treat relapsed/refractory AML.

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