Editor’s Choice: Virtual Summer Camp and Human Organ Factories

Happy Friday!

We’re more than halfway through July. Where is the summer going? As a reminder, it’s Juvenile Idiopathic Arthritis Awareness Month and if you’re looking for ways that you can bring attention to this often overlooked disease, we have some ideas here. In this week’s Editor’s Choice, we have details on how a summer camp for kids with a rare disease is responding to the COVID-19 pandemic. Next, we have a story that highlights how the families of rare disease patients are often the ones to jump-start research into their loved ones’ condition. Finally, the creator of the Segway has his sights set on a new project involving artificial human organs. We hope you enjoy your weekend!

 

Rare Disease Patient Families Push for Critical Research

A combined lack of awareness and little profit incentive for most drug companies means that rare diseases of all kinds often lag far behind in important research.

 

Summer Camp for Kids With Hemophilia Goes Virtual

The COVID-19 pandemic forced this camp to cancel its program for the summer. Instead, the program organizers decided to take the camp online.

 

Human Organ Factories: A New Project by Dean Kamen

The creator of the Segway has a new, impactful, and enterprising idea: artificial human organs.

 


Do you have a rare disease experience of your own? Share with us here.

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