Explaining Pompe Disease to My Son’s Doctors
Having a rare disease can feel isolating. Many people have never even heard of your condition, much less know anything about it. This is even a problem with doctors. Despite…
Having a rare disease can feel isolating. Many people have never even heard of your condition, much less know anything about it. This is even a problem with doctors. Despite…
Sometimes, certain drugs may be approved in different countries and not in others. However, drug approval spanning multiple countries highlights the importance of getting drugs and treatments into the hands…
I don’t know about you, but I always get incredibly happy when I see stories about a community rallying to support one of its own members. For example, those in…
It's no secret that COVID-19 can cause lasting effects on those it infects. Over the course of the pandemic, we've learned a lot more about this virus, including its connection…
In 1992, Elsa Burgos and her husband, living in Puerto Rico at the time, welcomed a new addition to their lives: their daughter Nicole. The pair were thrilled to have…
Within the United States, uveitis is considered a leading reason for preventable blindness. As the uveitis progresses, patients may also develop complications such as uveitic glaucoma. But this can…