Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: January 26, 2022

  1. Home>
  2. 2022>
  3. January>
  4. 26
Kidney Transplants and Anti-Semaphorin-3B Mediated Membranous Nephropathy

Kidney Transplants and Anti-Semaphorin-3B Mediated Membranous Nephropathy

  • Post author:Alyssa Stevens
  • Post published:January 26, 2022
  • Post category:Membranous Nephropathy

According to a recent article, a recent study shows evidence that anti-Semaphorin 3B antibodies are pathogenic and therefore patients diagnosed with membranous nephropathy should be monitored after a kidney transplant.…

Continue Reading Kidney Transplants and Anti-Semaphorin-3B Mediated Membranous Nephropathy
Using the Location Consistency Index to Identify Eyes with Subclinical Keratoconus
Source: Pixabay

Using the Location Consistency Index to Identify Eyes with Subclinical Keratoconus

  • Post author:Alyssa Stevens
  • Post published:January 26, 2022
  • Post category:Keratoconus

According to a recent article, a new study has developed a novel index that differentiates eyes with subclinical keratoconus and normal eyes. Keratoconus Keratoconus is a disorder affecting the cornea…

Continue Reading Using the Location Consistency Index to Identify Eyes with Subclinical Keratoconus
Zygel Safe and Well-Tolerated for Fragile X Syndrome
cbd123 / Pixabay

Zygel Safe and Well-Tolerated for Fragile X Syndrome

  • Post author:Jessica Lynn
  • Post published:January 26, 2022
  • Post category:Fragile X Syndrome

Cannabidiol (CBD) has recently been lauded for its many uses, ranging from stress relief to seizure reductions. Specialty pharmaceuticals company Zynerba Pharmaceuticals (“Zynerba”) developed an experimental cannabidiol gel called Zygel…

Continue Reading Zygel Safe and Well-Tolerated for Fragile X Syndrome
New Antibody Test for Autoimmune Hepatitis

New Antibody Test for Autoimmune Hepatitis

  • Post author:Rose Duesterwald
  • Post published:January 26, 2022
  • Post category:Autoimmune Hepatitis

Early detection is the key to treating so many types of cancer. Autoimmune hepatitis (AIH), chronic inflammation of the liver, is brought about by an immune system disorder. AIH must…

Continue Reading New Antibody Test for Autoimmune Hepatitis
TANGO Gene Therapy Could Treat Dravet Syndrome
TheDigitalArtist / Pixabay

TANGO Gene Therapy Could Treat Dravet Syndrome

  • Post author:Jessica Lynn
  • Post published:January 26, 2022
  • Post category:Dravet Syndrome

What do medication, vagus nerve stimulation, and low-carb ketogenic diets all have in common? Currently, these are all therapeutic options for those with Dravet syndrome. However, researchers and doctors believe…

Continue Reading TANGO Gene Therapy Could Treat Dravet Syndrome
Positive Clinical Data Available on Intraperitoneal Chemo-Immunotherapy for Ovarian Cancer
Hans / Pixabay

Positive Clinical Data Available on Intraperitoneal Chemo-Immunotherapy for Ovarian Cancer

  • Post author:Jessica Lynn
  • Post published:January 26, 2022
  • Post category:Ovarian Cancer

In a news release from January 24, 2022, immuno-pharma company AIM ImmunoTech Inc. ("AIM") shared that positive clinical data was now published. The data, which you can find in Clinical Cancer…

Continue Reading Positive Clinical Data Available on Intraperitoneal Chemo-Immunotherapy for Ovarian Cancer
Oscar’s Story: Bravery Through a Rhabdomyosarcoma Diagnosis
source: pixabay.com

Oscar’s Story: Bravery Through a Rhabdomyosarcoma Diagnosis

  • Post author:Kendall Mason
  • Post published:January 26, 2022
  • Post category:Rhabdomyosarcoma- embryonal

Oscar Warrent, a toddler from Norwich, England, has been through a lot in his two years of life. About three months ago, he was diagnosed with rhabdomyosarcoma, a rare form…

Continue Reading Oscar’s Story: Bravery Through a Rhabdomyosarcoma Diagnosis

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info