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Daily Archives: March 21, 2023

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UNM Children’s Hospital Supports Boy with IQSEC2
source: pixabay.com

UNM Children’s Hospital Supports Boy with IQSEC2

  • Post author:Jessica Lynn
  • Post published:March 21, 2023
  • Post category:Rare Disease

For the first two years of his life, Rafe Hibben seemed to be progressing like a relatively healthy little boy. But when he was two years old, Rafe’s health went…

Continue Reading UNM Children’s Hospital Supports Boy with IQSEC2
“Casey Cares” Supports Family of Girl with Wilms’ Tumor
JillWellington / Pixabay

“Casey Cares” Supports Family of Girl with Wilms’ Tumor

  • Post author:Jessica Lynn
  • Post published:March 21, 2023
  • Post category:Wilms' tumor

Autumn Carolino’s journey began with a stomach ache that just never seemed to go away. Paired with high fevers, the two-year-old’s health seemed to be going on a downward spiral.…

Continue Reading “Casey Cares” Supports Family of Girl with Wilms’ Tumor
How a Fluocinolone Acetonide Implant May Improve Uveitis Treatment
Source: Pixabay

How a Fluocinolone Acetonide Implant May Improve Uveitis Treatment

  • Post author:Jessica Lynn
  • Post published:March 21, 2023
  • Post category:Uveitis

Could an ocular implant be an effective therapeutic solution for individuals living with noninfectious uveitis? According to an article in HCP Live, the answer seems to be yes. A study…

Continue Reading How a Fluocinolone Acetonide Implant May Improve Uveitis Treatment
Researchers Discover First AGL Molecular Biomarker
source: pixabay.com

Researchers Discover First AGL Molecular Biomarker

  • Post author:Jessica Lynn
  • Post published:March 21, 2023
  • Post category:Acquired generalized lipodystrophy

  Also known as Lawrence syndrome, acquired generalized lipodystrophy (AGL) is an ultra-rare condition characterized by the destruction or loss of adipose tissue. Given the small population size, AGL is…

Continue Reading Researchers Discover First AGL Molecular Biomarker
Experts Bring Graft-versus-Host Disease Into Focus
source: unsplash.com

Experts Bring Graft-versus-Host Disease Into Focus

  • Post author:James Moore
  • Post published:March 21, 2023
  • Post category:Graft versus Host Disease/Graft-versus-Host Disease

According to a story from koin.com, graft-versus-host disease is a condition that can affect recipients of stem cell or organ transplants. Dr. Corey Cutler, Medical Director, Stem Cell Transplant Program,…

Continue Reading Experts Bring Graft-versus-Host Disease Into Focus
ICYMI: NORD Publishes Annual “State Report Card” to Rate States on Rare Disease Issues
6689062 / Pixabay

ICYMI: NORD Publishes Annual “State Report Card” to Rate States on Rare Disease Issues

  • Post author:Jessica Lynn
  • Post published:March 21, 2023
  • Post category:Rare Disease

  For the last eight years, the National Organization for Rare Disorders (NORD) has developed a State Report Card; the goal of this project is to evaluate the effectiveness of…

Continue Reading ICYMI: NORD Publishes Annual “State Report Card” to Rate States on Rare Disease Issues

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