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Daily Archives: July 10, 2023

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Pegozafermin: This Novel Treatment Could Improve Liver Health in NASH
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Pegozafermin: This Novel Treatment Could Improve Liver Health in NASH

  • Post author:Jessica Lynn
  • Post published:July 10, 2023
  • Post category:Nonalcoholic steatohepatitis

An estimated 25% of people in the United States have a condition called nonalcoholic fatty liver disease (NAFLD), a condition characterized by excess fat in the liver. Estimates vary but…

Continue Reading Pegozafermin: This Novel Treatment Could Improve Liver Health in NASH
Study of the Week: Using Deep Learning to Track Retinitis Pigmentosa Progression
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Study of the Week: Using Deep Learning to Track Retinitis Pigmentosa Progression

  • Post author:James Moore
  • Post published:July 10, 2023
  • Post category:Retinitis pigmentosa

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Using Deep Learning to Track Retinitis Pigmentosa Progression
Haegarda and Takhzyro Reduce HAE Related Emergency Room Visits
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Haegarda and Takhzyro Reduce HAE Related Emergency Room Visits

  • Post author:Jessica Lynn
  • Post published:July 10, 2023
  • Post category:Hereditary Angiodema/Hereditary angioedema

Treatment options such as Haegarda and Takhzyro have significantly improved the treatment landscape for people living with hereditary angioedema (HAE). The treatments, used as prophylaxis, work to reduce disease burden…

Continue Reading Haegarda and Takhzyro Reduce HAE Related Emergency Room Visits
ISB 2001 Earns Orphan Drug Designation for the Treatment of Multiple Myeloma
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ISB 2001 Earns Orphan Drug Designation for the Treatment of Multiple Myeloma

  • Post author:Jessica Lynn
  • Post published:July 10, 2023
  • Post category:Multiple Myeloma/Timely

Orphan Drug designation is granted to therapies that are designed to treat, diagnose, or prevent rare diseases or conditions. In the United States, a rare condition is one affecting fewer…

Continue Reading ISB 2001 Earns Orphan Drug Designation for the Treatment of Multiple Myeloma
A Family is Raising Awareness After Their Son’s ALL Diagnosis
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A Family is Raising Awareness After Their Son’s ALL Diagnosis

  • Post author:Jessica Lynn
  • Post published:July 10, 2023
  • Post category:Acute lymphoblastic leukemia

Nobody expects their child to be diagnosed with cancer. The idea of facing cancer at a young age can be shocking, terrifying. So when 4-year-old Ash Timmerman seemed slightly "off,"…

Continue Reading A Family is Raising Awareness After Their Son’s ALL Diagnosis
July 13 is GIST Awareness Day!

July 13 is GIST Awareness Day!

  • Post author:Jessica Lynn
  • Post published:July 10, 2023
  • Post category:Gastrointestinal Stromal Tumors/Timely

Raising awareness for rare diseases and conditions is important for many reasons. First, it helps to increase education and understanding around these rare conditions. Awareness also offers support to those…

Continue Reading July 13 is GIST Awareness Day!

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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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