Do you have cystic fibrosis? Are you searching for a stronger sense of community? Then BreatheCon, the unique virtual event spearheaded by the Cystic Fibrosis Foundation, is perfect for you!
Marisa Wexler, MS reported in Cystic Fibrosis News that the eighth annual BreatheCon will be held on February 9 and 10, 2024. The Cystic Fibrosis Foundation explains that:
BreatheCon offers a variety of ways to participate such as topic discussions, creative activities, and opportunities to build new friendships. Regardless of your individual CF experiences, milestones, and challenges, there is a place for you to find camaraderie with others in the adult CF community.
Ready to register? Head here for your free registration. As a special addition, registrants within the United States have the option to receive a special gift designed by Caleigh Haber-Takayama.
BreatheCon: A Cystic Fibrosis Community Event
Day One
The first day of BreatheCon begins at 6:45pm with affinity groups and one-on-one social networking opportunities. Over video chat, participants can break into a variety of different groups with others who share common interests, identities, or experiences. The affinity groups include those who were diagnosed as a teen or adult, first-time BreatheCon attendees, Spanish speakers, people with advanced cystic fibrosis lung disease, post-transplant individuals, and the LQBTQIA+ community. Can’t find a group that’s calling your name? Make your own!
Following the affinity groups is an introductory and welcome video from BreatheCon Chair Leah Schwanke, who lives with cystic fibrosis, from 7:15-7:25pm. Next comes a variety of discussions on topics such as:
- “Embracing the CF Journey: Nurturing your Mental Health Through Coping and Support”
- “Unleash Your Potential: Managing CF Daily Care”
- “Balancing Act: Parenting with CF”
- “Thriving in the Workplace: Navigating Working Full-Time with Cystic Fibrosis”
Today’s event ends with a session for seniors with cystic fibrosis to meet and greet, a closing message, and optional happy hour groups.
All Friday sessions will be accessible in Spanish.
Day Two
The second day of BreatheCon begins with welcome lounges and opportunities for one-on-one socializing. Sessions, which begin at 2pm, cover the following topics:
- “To Share or Not to Share: Discussing CF in Social Situations”
- “Beautiful You, Inside and Out: CF and Body Image”
- “Breaking Down Barriers: Navigating CF in Communities of Color”
- “CFTR Modulator Mayhem: Embracing the Element of Surprise”
- “Cystic Fibrosis Related Diabetes”
- “Don’t You Forget About Me: Life Without CFTR Modulators”
- “Coming Together: Black People with CF”
- “Finding Our Authentic Stories”
In the latter half of the day, BreatheCon participants may also choose to participate in a mindfulness activity or a cooking course that aligns with the dietary requirements of people with cystic fibrosis. The day ends with a final wrap-up and optional happy hour groups.
