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Daily Archives: July 15, 2026

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Natalie’s GACI Story

Natalie’s GACI Story

  • Post author:Patient Worthy Contributor
  • Post published:July 15, 2026
  • Post category:Generalized arterial calcification of infancy-1 (GACI1)

Editor's Note: Patient Worthy is honored to share this story, originally written by Anne and Jerry van Wyk, and shared with us by our friends at the Brighter Hope Foundation.…

Continue Reading Natalie’s GACI Story
“Two Rare Diagnoses, One Common Lesson: Start with Genetic Testing”

“Two Rare Diagnoses, One Common Lesson: Start with Genetic Testing”

  • Post author:Patient Worthy Contributor
  • Post published:July 15, 2026
  • Post category:Rare Disease

Every day, parents just like me sit in doctors’ offices searching for answers. They know something isn’t quite right. Maybe their child isn’t meeting milestones. Maybe their development has stalled,…

Continue Reading “Two Rare Diagnoses, One Common Lesson: Start with Genetic Testing”
New Experimental Drug Offers Hope for Mesothelioma Patients

New Experimental Drug Offers Hope for Mesothelioma Patients

  • Post author:Austin Newman
  • Post published:July 15, 2026
  • Post category:Mesothelioma

As reported on Vermont Biz, researchers at the University of Vermont (UVM) and biotechnology company RS Oncology have reported encouraging results from an early-stage clinical trial of a novel treatment…

Continue Reading New Experimental Drug Offers Hope for Mesothelioma Patients
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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