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Cystic Fibrosis Research, Inc.’s California Rare Disease Advisory Council Virtual Coalition Meeting
February 17, 2021 @ 1:00 pm - 2:30 pm
California Rare Disease Advisory Council Virtual Coalition Meeting
February 17, 2021
Legislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February.
If you would like to review the proposed bill language, please email Stacie Reveles at [email protected].
Our next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event.